A study published in Rheumatology and Therapy indicated that patient-reported outcome measures (PROMs) should be used more frequently in outpatient settings to help improve shared decision-making conversations between patients and providers.
Aiming to gather feedback about commonly used PROMs for spondyloarthritis (psoriatic arthritis [PsA] and ankylosing spondylitis [AS]), the authors designed semistructured tasks and probes to elicit qualitative patient feedback regarding general health and disease-specific PROMs. During in-person and telephone meetings, participants were asked to identify which content resonated with them and to identify items that may not have captured their experience living with PsA or AS. After a participant review of PROMs, both individualized and small group were reviewed and concept elicitation were captured.
According to the study results, both groups of participants identified concepts that reflected their experiences living with a chronic disease. Common concepts included fatigue, isolation, depression, interpersonal relationships, and sexual intimacy. Additionally, common PROM factors (eg, pain, physical function, ability to perform activities of daily living, and stiffness) were identified as important to participants.
Upon analysis, the authors found a number of qualitative differences in the participants perceptions about what they would like to see addressed by PROMs. They showcased one example wherein participants with AS indicated wanting PROMs to elicit feedback about their experiences with pelvic and chest pain (eg, as a result of chest inflammation/tenderness and chest expansion). Meanwhile, in another example, participants with PsA felt that PROMs should include measures about the embarrassment and shame that they experience as well as the impact of PsA on daily living.
The authors reiterated that these results show that PROMs should be incorporated more frequently within outpatient settings to help improve the patient-provider relationship. In addition, they argued that since participants indicated constructs such as isolation, depression, fatigue, and relationships with others, PROMs are critical to highlighting the patient experience of living with spondyloarthritis.—Jessica Garlewicz
Chakravarty SD, Abell J, Leone-Perkins M, Orbai AM. A Novel qualitative study assessing patient-reported outcome measures among people living with psoriatic arthritis or ankylosing spondylitis. Rheumatol Ther. Published online February 22, 2021. doi:10.1007/s40744-021-00289-w