News & Trends
Survey: Rosacea Negatively Impacts Emotional Well-Being
Rosacea negatively impacts self-perceptions; emotional, social, and overall well-being; and disease-related quality of life, according to a recent survey from Zeichner and colleagues. The findings were published in Journal of Clinical and Aesthetic Dermatology.
The web-based survey included 600 adults living in the United States who had been diagnosed with erythematotelangiectatic rosacea or papulopustular rosacea. Participants completed questionnaires that assessed the psychosocial aspects of rosacea, which included the Satisfaction With Appearance Scale and modified Satisfaction With Appearance Scale, Impact Assessment for Rosacea Facial Redness, Rosacea-Specific Quality-of-Life, and RAND 36-Item Short Form Health Survey. Additionally, participants with papulopustular rosacea completed the Impact Assessment for Rosacea Facial Bumps or Pimples.
The majority of participants with either erythematotelangiectatic rosacea (95.6%) or papulopustular rosacea (93.7%) rated their disease as mild or moderate.
Overall, 45% of participants with erythematotelangiectatic rosacea and 53% of participants with papulopustular rosacea disagreed or strongly disagreed that they were satisfied with their appearance due to rosacea. In addition, 42% and 27% of participants with erythematotelangiectatic rosacea and papulopustular rosacea, respectively, agreed or strongly agreed that they worried about how people will react when they see their rosacea, and 43% and 59%, respectively, agreed or strongly agreed that they felt their rosacea made them unattractive to others.
Both cohorts showed the negative impact of rosacea on Rosacea-Specific Quality-of-Life total and domain scores and reported worse overall and domain scores on the 36-item Short Form Health Survey compared with population norms in the United States.
“Overall, both erythematotelangiectatic rosacea and papulopustular rosacea cohorts reported a substantial negative impact of rosacea on quality of life on a range of instruments,” the researchers concluded.
Zeichner JA, Eichenfield LF, Feldman SR, Kasteler JS, Ferrusi IL. Quality of life in individuals with erythematotelangiectatic and papulopustular rosacea: findings from a web-based survey. J Clin Aesthet Dermatol. 2018;11(2):47-52.
Tools for Dermatologists and Support Staff
As part of its mission, The National Rosacea Society (NRS) seeks to raise public awareness and support research, and to provide medical professionals with patient education and professional tools that can aid in the diagnosis, treatment, and effective management of this chronic and widespread disorder. The NRS provides patient education materials, continuing medical education opportunities as well as professional membership to dermatologists.
The NRS patient education materials published are available in bulk quantities to health professionals, edited by physicians and incorporate the standard criteria for rosacea. These include the introductory booklets “Understanding Rosacea” and “Managing Rosacea”; the “Rosacea Diary” and the “Triggers Checklist” tear-sheet tablet, both of which aid in identifying and minimizing individual rosacea triggers; and the newsletter, Rosacea Review. An easy-to-use, interactive order form makes it fast and simple to request the desired quantities.
The NRS also makes a broad range of professional materials available specifically for health professionals, such as the clinical scorecard for evaluating rosacea patients and a “Faces of Rosacea” office poster. NRS consensus committees and review panels of 28 rosacea experts developed the recently published updated standard classification and pathophysiology of rosacea, a standard grading system, and standard management options to provide standard criteria and terminology for the diagnosis and management of rosacea. The NRS recently published updated rosacea treatment algorithms online, reflecting subsequently approved medical therapies. Professional materials may be additionally requested using the online order form.
Another resource is the Rosacea Learning Center, an educational resource produced by Haymarket Medical Education for dermatologists and other health care providers interested in continuing medical education that focuses on rosacea.
Physicians may also become professional members of the NRS. By joining the NRS, dermatologists will be included in the Professional Member listing in the Physician Finder section of this site (seen by more than 1 million people with rosacea each year) and gain increased access to the broad range of educational resources provided by the Society. In addition, the donation will be used to support the NRS research grants program, and members will receive a reception window decal and office display card showing their support.
For more information, please visit https://www.rosacea.org/physicians/professionalmembership.